Fibromyalgia

Imladris · Post by **Imladris** » Tue Oct 03, 2006 1:58 am

Does anyone else have this condition? I could do with someone who understands what it feels like to have a general whinge to and sympathise with.

Supersilly@rse · Post by **Supersilly@rse** » Tue Oct 03, 2006 2:03 am

Oh you poor thing! That's terrible. I don't have it myself but my lovely fella has suffered with post viral neuropathy, which has a lot of the same symptoms. Think fatigue, burning nervous system, pain, pins and needles and anxiety attacks.

At first we didn't realise that it was all part of the same thing, so looked at Fibromyalgia, CFS, ME etc....

Do you have support at home?

*sending lots of lovely soothing vibes*

cherandbuster · Post by **cherandbuster** » Tue Oct 03, 2006 2:33 am

Imladris wrote: Does anyone else have this condition? I could do with someone who understands what it feels like to have a general whinge to and sympathise with.

I don't have it

But I'm here to offer you all the sympathy and compassion that I can

Imladris · Post by **Imladris** » Tue Oct 03, 2006 4:02 am

Thanks, it means so much to know that people I've only just met care enough to let me have a moan.

I can cope with the tiredness most of the time, I can even cope with the sleep disruption as my wonderful doc has prescribed slepping tablets which I am careful not to rely on but they help soo much.

What really gets me down is the pain. I had a really busy period at work recently and was run ragged doing flowers (I'm a florist) for 7 funerals (couple of them had lots) and then ended the week with a wedding. Then I just collapsed into a chair and didn't want to move!! I get most of my pain in my hands and up my arms and although this was over a month ago I'm still suffering. Typing also doesn't help but fg has become a bit of a lifeline at the mo.

End of moan - got to get back to work, see you all later.

I'm normally quite a cheerful person, honest!! xx

Imladris · Post by **Imladris** » Tue Oct 03, 2006 5:50 am

thanks hammy, i have got this book, it has been a help - mainly for my mum to read and then nag me about not making all the lifestyle changes it recommends!!!

Cheers, see you in the pub

Kimber767 · Post by **Kimber767** » Tue Oct 03, 2006 5:50 am

I have a friend with this condition, and I know how tough it can be. Hang in there.

tedhutchinson · Post by **tedhutchinson** » Tue Oct 03, 2006 12:37 pm

Is fibromyalgia just a vitamin D deficiency by Bill Sardi

Unless you take steps to check your vitamin d status you will never know if this is the case or not. If you follow the links on The Vitamin D council website you will find a good source of 5000iu Cholecalciferol Vitamin D3 capsules. One of these a day for around 20 weeks should raise your vitamin d status sufficiently enough to notice the difference in your pain, mood, & energy levels. You could of course save money and just spend around 30 minutes outside in the sunshine around midday as regularly as possible at least 3/4 times a week, as vitamin d is made in the skin if you are not covering it with clothes, sunscreen or cosmetics. Laying naked in the sun will ensure maximum vitamin d synthesis. Standing fully dressed reduces the amount of skin exposed to around 5% so limiting the amount of vitamin d you can make.

The reports at this site

Healthresearchforum go into the matter of SAFE SUNBATHING in much greater detail.

This site will tell you what the risk of sunburn is where you live. And for those who live in more northerly latitudes This site will tell you when the sun is strong enough to make vitamin d where you live.

You must of course try to avoid sunburn as it is this, rather than sun exposure, which leads to skin cancers. More about the many conditions which are prevented by plenty of sunshine Here at Sunarc

Imladris · Post by **Imladris** » Wed Oct 04, 2006 2:25 am

Thanks for that Ted. It kind of makes sense 'cos I'm not a sun lover, I get prickly heat if I get too much sun exposure so I tend to avoid it.

I will definitely lokk into this.

tedhutchinson · Post by **tedhutchinson** » Wed Oct 04, 2006 3:30 am

Imladris wrote: Thanks for that Ted. It kind of makes sense 'cos I'm not a sun lover, I get prickly heat if I get too much sun exposure so I tend to avoid it.

I will definitely lokk into this.:)Holland and Barrett have D3 (I've checked with customer services it is D3) at half price at the moment for those who don't want to buy the 5000iu capsules from the link to the USA suppliers at the Vitamin D council above. I find taking ten a day of these little pills a bit of a drag. But I only need them between end October and March as I can sunbathe regularly without sunscreen or ill effects.

If you have a tendency to burn easily boosting your vitamin d status will speed up the tanning process and Dietary protection is provided by carotenoids, tocopherols, ascorbate, flavonoids, or n-3 fatty acids, contributing to maintenance resistance as part of lifelong protection.

Omega 3 in particular is good for Photoprotective and anti-skin-aging effects of eicosapentaenoic acid in human skin in vivo. stopping your skin burning and ageing.

Don't also forget that drinking green tea (and indeed washing in it) will provide sunburn protection and it is also argued will protect against the development of melanoma. If you wait after the water has boiled, so it cools down to around 80, it brews a sweeter more mellow cup. A slice of lemon or ginger rings the changes. Health benefits of Green tea

Increase your protection from Colds and Epidemic Influenza with Vitamin D

weeder · Post by **weeder** » Wed Oct 04, 2006 6:04 pm

Imladris wrote: Thanks for that Ted. It kind of makes sense 'cos I'm not a sun lover, I get prickly heat if I get too much sun exposure so I tend to avoid it.

I will definitely lokk into this.

Hi there... Im a florist. Have been my whole life. My question is.... are you certain you have been diagnosed correctly? Pain in the hands and arms is quite common for those of us who have worked in this field for many years.

I was a florist who became a landscaper... if I overdo it.. I get pain in my fingers, wrists and tendenitis in my elbows and arms. Try tiger balm and wrist braces and an over the counter anti inflamatory drug.

Imladris · Post by **Imladris** » Thu Oct 05, 2006 1:17 am

weeder wrote: Hi there... Im a florist. Have been my whole life. My question is.... are you certain you have been diagnosed correctly? Pain in the hands and arms is quite common for those of us who have worked in this field for many years.

I was a florist who became a landscaper... if I overdo it.. I get pain in my fingers, wrists and tendenitis in my elbows and arms. Try tiger balm and wrist braces and an over the counter anti inflamatory drug.
Hiya Weeder,

Thanks fellow florist! Yes my doc and I are as certain as we can be that it is fibromyalgia, unfortunately no blood tests can confirm it. I was running a tearoom when it started, had to give it up and sorted of drifted into floristry since-although I love it (most of the time)!!

I'm actually quite lucky as I'm not too bad most of the time, it gets worse after I've been really busy, predictably but I usually live a fairly normal life and just make allowances for what I know I can't do.

nick1289 · Post by **nick1289** » Sun Oct 22, 2006 6:58 pm

Hi Imladris, someone mentioned about virus etc. Have you ever heard of a zapper? It uses electricity in a way to zap bad bugs. There's a super zapper deluxe and this one looks good too at zap.intergate.ca I also saw awhile ago something about specific enzymes for fibromyalgia but would do the zapper if it was only one thing to do.

nick1289

Imladris · Post by **Imladris** » Fri Oct 27, 2006 7:31 am

nick1289;437764 wrote: Hi Imladris, someone mentioned about virus etc. Have you ever heard of a zapper? It uses electricity in a way to zap bad bugs. There's a super zapper deluxe and this one looks good too at zap.intergate.ca I also saw awhile ago something about specific enzymes for fibromyalgia but would do the zapper if it was only one thing to do.

nick1289
Thanks Nick for taking the time to post. I've been away for a few days and just seen this. It's something for me to look into definitely. People here have been very kind with their help and looking things up for me.

alobar51 · Post by **alobar51** » Wed Nov 01, 2006 7:11 pm

Imladris;417811 wrote: Does anyone else have this condition? I could do with someone who understands what it feels like to have a general whinge to and sympathise with.

We've had pretty good success dealing with it. A few dietary changes, the correct supplements and exercises is all it takes.

tedhutchinson · Post by **tedhutchinson** » Thu Nov 02, 2006 1:12 am

But don't forget that

Vitamin D deficiency is common in fibromyalgia and occurs more frequently in patients with anxiety and depression and the symptoms of Vitamin D insufficiency overlap with the symptoms of FMS so it's impossible, without taking steps to ensure the vitamin d insufficiency is dealt with and Serum 25(OH)D levels status raised to between 35–55 ng/mL, to be sure if it's one or the other.

As correcting vitamin d3 status by using an adequate amount of Cholecalciferol vitamin d3 or regular sunshine exposure, is not only both relatively cheap and easy but also completely safe, it seems the obvious first choice.