Colon Cancer

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lou lou belle
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Colon Cancer

Post by lou lou belle »

Dear Members

I have not been on FG for a while, my father-in-law has colon cancer so I been busy helping.

My worry is that he is 70, and has lost a massive amount of weight.

He is losing a lot of blood, which has made him really week.

He is currently in hospital, but nothing seems to be happening in respect to medical intervention. The doctor has not been very forthcoming.

I was just wondering if anyone has experience of colon cancer, I do believe that he is the last stages of the disease and its only a matter of time.

We are totally in the dark.
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spot
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Post by spot »

I've known a couple of people with it. Both were around that age, both came out of hospital. One lived another ten years and died of something different, the other died a year or two later.

The hospital will have a note somewhere on who the patient would like the medical staff to discuss treatment and prognosis with. Sometimes it's the patient, sometimes it's a nominated family member. There will be a note on how much they've asked to be informed of. If you think those details are wrong you ought to be able to have the instructions discussed and changed. Some patients or families simply don't want to be told, some do. If Raven's around, she knows more about it than I do - you might PM her for advice, she works in that sort of area.

If you want to know and you get permission to be told, I'd have thought the things you need to ask are the stage it's reached and the intended treatment. Whether to ask or not is a family decision and your father in law really ought to have a significant say in that.
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flopstock
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Colon Cancer

Post by flopstock »

That sucks eggs lou lou. I'm sorry to hear you're going through this with him.



My friend at work, her husband had it and went from being very, very sick to them now off traveling the country on vacations these days. I do think they caught it fairly early on though.



I'm not medically up on much of anything, Ravens my choice to ask also, but my thoughts are with you.



Hang tough!:-6
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Betty Boop
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Colon Cancer

Post by Betty Boop »

Sorry to hear your news, no experience of it no, I hope you are able to get some answers soon. Maybe Raven will have a better idea, it's quite a shady area, especially if the patient has requested that the family are not told too much.
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mrsK
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Post by mrsK »

Sorry to hear your news.

I have had no experience with colon cancer.

Sending good thoughts to you & the family:-6
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Oscar Namechange
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Colon Cancer

Post by Oscar Namechange »

spot;1260462 wrote: I've known a couple of people with it. Both were around that age, both came out of hospital. One lived another ten years and died of something different, the other died a year or two later.

The hospital will have a note somewhere on who the patient would like the medical staff to discuss treatment and prognosis with. Sometimes it's the patient, sometimes it's a nominated family member. There will be a note on how much they've asked to be informed of. If you think those details are wrong you ought to be able to have the instructions discussed and changed. Some patients or families simply don't want to be told, some do. If Raven's around, she knows more about it than I do - you might PM her for advice, she works in that sort of area.

If you want to know and you get permission to be told, I'd have thought the things you need to ask are the stage it's reached and the intended treatment. Whether to ask or not is a family decision and your father in law really ought to have a significant say in that. Spot on Spot. In any situation like this, no Consultant or member of Hospital staff will discuss the Patient Prognosis without the Patients Permission so i would assume that in this case, that is why the hospital will not offer up the Imformation to the Poster. Infact, when I was in Hospital myself for some period, I was specifically asked If there was anyone that I did NOT want knowing all my details and they are obliged to keep that confidentiality. One of the reasons, why any hospital will never tell you anything over the phone incase you are not who you claim to be. Perhaps the Patient does not want any-one except Immediate family knowing the details and why the hospital is not forth-coming in Imformation. Just because we may be related to a person or by marriage, does not mean we have an automatic right to know their most private Imformation. Weather the patient wants to share the Prognosis, is up to the Patient if they are of sound mind. My Father certainly did not want any-one knowing his business. In my mothers case, where the stroke left her so brain damaged, the consultants were brilliant and called all the family together for an in depth explanation as to what had happened to her and her life expectancy. I understand this is the normal Practice but If the patient is of sound mind, It's up to them who they share with.

The simplist method is to google 'Colonic cancer and Prognosis'. There will be a mass of Imformation on the web or I can reccoment the US 'Mayo Clinic' to google.

Hospitals certainly do not have a code of secrecy just to annoy relatives by marraige. Practices are in place to protect Patient Confidentiality. The Poster could try asking her Father In law if he would mind her asking for Imformation on him.

I asked my Fathers Consultant a matter on one Occassion and he told me that he needed my Fathers permission before he could tell me any more. I'm afraid, it has to be that way. Infact, If I remember correctly, my husband was even asked If they could talk to me in his absense.

LLB... It is distressing seeing our elders have cancer. From the experience with my Father, His age may be why there seems to be little Intervention. To be blunt, there may be very good reason for no Intervention as such. I know how frustrating this can be because we all like re-assurence in times like this but the blunt truth Is they will not Intervene If the Cancer has gone way too far so that medical Intervention may be of no benifit to the Patient what-so-ever. He may have other under-lying health problems that make It impossible for them to operate or offer Radiotherepy or Chemo. try googling the USA Mayo clinic that offer all kinds of explanations of various cancers If you still can not get the Imformation from the Consultant. The other alternative is to ask your FIL directly If he will give the Consultant permission to discuss his Prognosis with you. This is the USA Mayo Clinic site of Colon Cancer. You can follow the links on each page to read more.

http://www.mayoclinic.com/health/colon- ... N=symptoms
At the going down of the sun and in the morning, we will remember them. R.L. Binyon
Skylark
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Colon Cancer

Post by Skylark »

lou lou belle;1260457 wrote: Dear Members

I have not been on FG for a while, my father-in-law has colon cancer so I been busy helping.

My worry is that he is 70, and has lost a massive amount of weight.

He is losing a lot of blood, which has made him really week.

He is currently in hospital, but nothing seems to be happening in respect to medical intervention. The doctor has not been very forthcoming.

I was just wondering if anyone has experience of colon cancer, I do believe that he is the last stages of the disease and its only a matter of time.

We are totally in the dark.


Sorry to hear your news!

Some doctors are not very forthcoming. It is best for the next of kin to ask direct questions to the doctor and then you all may find out what the prognosis is, if he/she has not already done so.

In my experience the patient does not always get told but the next of kin does.

There are no hard and fast rules.
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Oscar Namechange
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Post by Oscar Namechange »

Skylark;1260732 wrote:

In my experience the patient does not always get told but the next of kin does.

There are no hard and fast rules.
I'm sorry Skylark but I have to disagree strongly with you on that one. My husband was asked permission very recently If his Oncology team could speak to me by phone or whatever in his absence. I have been in my Doctors surgery and asked him of a matter of my husbands and although he is also my husbands GP, he would not tell me due to patient confidentiality. In LLB's case, if her Mother In law is alive and well, she would be the Patients next of kin anyway. If anyone would be be Informed, It would be her, not the patients son or daughter-in-law. Her Father In law has a right to Patient Confidentiality and just because he Is Ill, It does not mean that his Consultant can discuss his prognosis with any member of his family without his permission.

I also dis-agree with you that the Patient does not get told. Are you really trying to say that If a Doctor chooses not to tell his Patient how Ill he is, that's OK ??? Absolutely not. There is also Patient choice where the Patient must be given all options of treatment. That could be surgery, Chemo, Radiotherepy or If the Patient is elderly, he may choose not to under-go any treatment at all and just be made comfortable as my Father chose. Can you imagine the lawsuits piled up on the desks of Doctors from families suing the backside off them because they didn't let the patient know how Ill they were and what options were available?

I suggest you get an up to date copy of 'The Patients Charter' and read It.

Imagine the scenario as you put It where the next of kin gets told but the Patient doesn't? Let's say they are not happily married and the next of kin wants the life Insurence from their death. This leaves the next of kin with the descision to withhold Imformation from the Patient that could prolong their life. In this day and age, that is just not possible.

Oncology Departments have Liason people. LLB could ask to see the Liason personnel and express their concern and they will Liase with her FIL. Those Liason Personnel are duty bound to keep the Patient fully up to date with developments in their condition unless they are not of sound mind Ie A major stroke leading to brain damage.

Your post gives anyone reading It that Doctors play God with who and what they tell patients with a cavalier attitude. That Is absolutely not true. In many cases with cancer, the Patient may tell his consultant that he does not want to know what the prognosis Is and take each day at a time as my Sister did.

My husband survived advanced cancer and radical open surgery. He now has secondry cancer and the entire Oncology Department as they all are, can not be faulted in care and support. Your post gives totally the wrong Impression of our NHS and hospitals.
At the going down of the sun and in the morning, we will remember them. R.L. Binyon
Skylark
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Colon Cancer

Post by Skylark »

oscar;1260773 wrote: I'm sorry Skylark but I have to disagree strongly with you on that one. My husband was asked permission very recently If his Oncology team could speak to me by phone or whatever in his absence. I have been in my Doctors surgery and asked him of a matter of my husbands and although he is also my husbands GP, he would not tell me due to patient confidentiality. In LLB's case, if her Mother In law is alive and well, she would be the Patients next of kin anyway. If anyone would be be Informed, It would be her, not the patients son or daughter-in-law. Her Father In law has a right to Patient Confidentiality and just because he Is Ill, It does not mean that his Consultant can discuss his prognosis with any member of his family without his permission.

I also dis-agree with you that the Patient does not get told. Are you really trying to say that If a Doctor chooses not to tell his Patient how Ill he is, that's OK ??? Absolutely not. There is also Patient choice where the Patient must be given all options of treatment. That could be surgery, Chemo, Radiotherepy or If the Patient is elderly, he may choose not to under-go any treatment at all and just be made comfortable as my Father chose. Can you imagine the lawsuits piled up on the desks of Doctors from families suing the backside off them because they didn't let the patient know how Ill they were and what options were available?

I suggest you get an up to date copy of 'The Patients Charter' and read It.

Imagine the scenario as you put It where the next of kin gets told but the Patient doesn't? Let's say they are not happily married and the next of kin wants the life Insurence from their death. This leaves the next of kin with the descision to withhold Imformation from the Patient that could prolong their life. In this day and age, that is just not possible.

Oncology Departments have Liason people. LLB could ask to see the Liason personnel and express their concern and they will Liase with her FIL. Those Liason Personnel are duty bound to keep the Patient fully up to date with developments in their condition unless they are not of sound mind Ie A major stroke leading to brain damage.

Your post gives anyone reading It that Doctors play God with who and what they tell patients with a cavalier attitude. That Is absolutely not true. In many cases with cancer, the Patient may tell his consultant that he does not want to know what the prognosis Is and take each day at a time as my Sister did.

My husband survived advanced cancer and radical open surgery. He now has secondry cancer and the entire Oncology Department as they all are, can not be faulted in care and support. Your post gives totally the wrong Impression of our NHS and hospitals.


You strongly disagree with the cases that you know about but you can't possibly know what every hospital and doctor does or doesn't do. I can only say what I know.

Sometimes it is not in the best interests of the patient to know or want to know that they have cancer. In those cases the next of kin is told without his permission.

And believe me doctors do play God in some circumstances, you only have to read the papers to know that!

And you mention what options are available. Well if a patient has not got a good quality of life or old age then the options will be decreased.

The National Health Service is not a bottomless pit and many cancer patients die because of lack of funding. It is not as black or white like you think it is.

Recently there was a very ill young man who needed a liver transplant. Although he was a drinker many people though he should have a transplant but it went to someone else and he died because he was a poor risk.

My post does not give the wrong impression about the N.H.S. The reality is that there are good and bad doctors and nurses. The ones who work hard do their very best and the worst ones should be rooted out and sacked.

There are fantastic hospitals and there are failing ones. In the failing ones nurses leave their patients to starve and die. It has been in the papers!

I am glad to hear that your husband is getting the best of care and good luck to both of you!
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abbey
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Post by abbey »

Good post skylark. :-6

I am sad to say I absolutely agree with you!

If I hadn't been a bolshy sod and stood up for my mum she would have starved in hospital,

I insisted on taking her meals in daily despite being told I would be escorted and banned from the hospital.

Just recently My sister was informed by her consultant (on her mobile phone) that she had cancer.

She was in Asda at the time!

Talk about insensitive. :(
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kazalala
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Post by kazalala »

abbey;1261142 wrote: Good post skylark. :-6

I am sad to say I absolutely agree with you!

If I hadn't been a bolshy sod and stood up for my mum she would have starved in hospital,

I insisted on taking her meals in daily despite being told I would be escorted and banned from the hospital.

Just recently My sister was informed by her consultant (on her mobile phone) that she had cancer.

She was in Asda at the time!

Talk about insensitive. :(


that is sad Abbey:(




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Oscar Namechange
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Colon Cancer

Post by Oscar Namechange »

Skylark;1261091 wrote: You strongly disagree with the cases that you know about but you can't possibly know what every hospital and doctor does or doesn't do. I can only say what I know.

Sometimes it is not in the best interests of the patient to know or want to know that they have cancer. In those cases the next of kin is told without his permission.

And believe me doctors do play God in some circumstances, you only have to read the papers to know that!

And you mention what options are available. Well if a patient has not got a good quality of life or old age then the options will be decreased.

The National Health Service is not a bottomless pit and many cancer patients die because of lack of funding. It is not as black or white like you think it is.

Recently there was a very ill young man who needed a liver transplant. Although he was a drinker many people though he should have a transplant but it went to someone else and he died because he was a poor risk.

My post does not give the wrong impression about the N.H.S. The reality is that there are good and bad doctors and nurses. The ones who work hard do their very best and the worst ones should be rooted out and sacked.

There are fantastic hospitals and there are failing ones. In the failing ones nurses leave their patients to starve and die. It has been in the papers!

I am glad to hear that your husband is getting the best of care and good luck to both of you! Thankyou for your good wishes but I still disagree with you.

First of all the kid who needes a liver transplant has nothing to do with the Patients Charter or Doctors not coming forward with Imfo. That is regardeing the Issue of organ donation and weather anyone who has appeared to have wasted their own organs by refusing to stop drinking, be given an organ when there are more deserving cases.

No, the NHS is not a bottomless pit but It does have a standard. We are not talking about funding here which is an entirely different issue, we are talking about Imformation appearing to be not forth-coming.

The Patients Charter sets the standard, however I am willling to admit that as in any Industry, you will always get seniors who cut corners and are less un-caring than others. Also, as in any Industry, all staff have seniors and If your not happy with the treatment you are getting, then take It to their seniors and don't Just put up with It.

I agree that the age of a Patient does decrease treatment available, of course it does, but this does not mean the doctor does not have to discuss prognosis with the patient and if necessary, tell them, there is nothing that they can do.
At the going down of the sun and in the morning, we will remember them. R.L. Binyon
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Oscar Namechange
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Post by Oscar Namechange »

abbey;1261142 wrote: Good post skylark. :-6

I am sad to say I absolutely agree with you!

If I hadn't been a bolshy sod and stood up for my mum she would have starved in hospital,

I insisted on taking her meals in daily despite being told I would be escorted and banned from the hospital.

Just recently My sister was informed by her consultant (on her mobile phone) that she had cancer.

She was in Asda at the time!

Talk about insensitive. :( I am very sorry to hear that Abbey and I send good wishes for your sister. However, the opening post, is regarding the Doctors not being forth-coming with Imfo to relatives.

I admit that some staff in Hospitals are complete shytes. For example, my mother was paralised from a major stroke and her meal would be stuck in front of her with a knife and fork when she would have starved if we had not been there to spoon feed her. Apart from that, I could not fault the doctors or her treatment.
At the going down of the sun and in the morning, we will remember them. R.L. Binyon
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spot
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Post by spot »

oscar;1260773 wrote: I also dis-agree with you that the Patient does not get told. Are you really trying to say that If a Doctor chooses not to tell his Patient how Ill he is, that's OK ??? Absolutely not. There is also Patient choice where the Patient must be given all options of treatment.


This article in the Journal of Medical Ethics discusses the question, it makes it quite clear that patients who say they don't want either themselves or their relatives telling stand at least a reasonable chance of having their wish respected by the hospital.

Thirty five per cent of law students and 11.7% of medical students favoured telling about the diagnosis (p = 0.0004) and 25.6% of law students and 7% of medical students favoured telling about the prognosis (p That's a minority of hospital management wanting to force the information on patients reluctant to be informed.
Nullius in verba ... ☎||||||||||| ... To Fate I sue, of other means bereft, the only refuge for the wretched left.
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Oscar Namechange
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Post by Oscar Namechange »

spot;1261203 wrote: This article in the Journal of Medical Ethics discusses the question, it makes it quite clear that patients who say they don't want either themselves or their relatives telling stand at least a reasonable chance of having their wish respected by the hospital.

Thirty five per cent of law students and 11.7% of medical students favoured telling about the diagnosis (p = 0.0004) and 25.6% of law students and 7% of medical students favoured telling about the prognosis (p That's a minority of hospital management wanting to force the information on patients reluctant to be informed. As I said In an earlier post Spot many do not want to know the prognosis such as my sister however I am relibaly Imformed by my sister who is a staff nurse at Sussex County Hospital in Brighton that each case is judged on It's merits. A patient may express their wish that they do not want to hear any details, yet staff force the prognosis on them If It's considered they will make a good recovery with treatment as that Imfo could be very benificial to their mental well being. She does agree with me though, that relatives do not have a god given right to Imformation on the Patient unless the Patient is under 17 years old.
At the going down of the sun and in the morning, we will remember them. R.L. Binyon
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spot
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Post by spot »

oscar;1261216 wrote: As I said In an earlier post Spot many do not want to know the prognosis such as my sister however I am relibaly Imformed by my sister who is a staff nurse at Sussex County Hospital in Brighton that each case is judged on It's merits. A patient may express their wish that they do not want to hear any details, yet staff force the prognosis on them If It's considered they will make a good recovery with treatment as that Imfo could be very benificial to their mental well being. She does agree with me though, that relatives do not have a god given right to Imformation on the Patient unless the Patient is under 17 years old.


Then what on earth has this thread descended into argument over? That's all anyone ever claimed.
Nullius in verba ... ☎||||||||||| ... To Fate I sue, of other means bereft, the only refuge for the wretched left.
When flower power came along I stood for Human Rights, marched around for peace and freedom, had some nooky every night - we took it serious.
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Oscar Namechange
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Post by Oscar Namechange »

spot;1261218 wrote: Then what on earth has this thread descended into argument over? That's all anyone ever claimed.
Because as usual Spot, others posts take it off thread such as posts about an Alcoholic being denied a liver transplant, patients not getting fed etc. If you read my posts you will see that I have tried to concentrate the matter posted in the OP.
At the going down of the sun and in the morning, we will remember them. R.L. Binyon
Skylark
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Post by Skylark »

abbey;1261142 wrote: Good post skylark. :-6

I am sad to say I absolutely agree with you!

If I hadn't been a bolshy sod and stood up for my mum she would have starved in hospital,

I insisted on taking her meals in daily despite being told I would be escorted and banned from the hospital.

Just recently My sister was informed by her consultant (on her mobile phone) that she had cancer.

She was in Asda at the time!

Talk about insensitive. :(


Thanks Abbey. More people need to be like you. You supported and stuck up for you mum and that is to your credit.

Well, that is insensitive to be told you have cancer over a mobile in a supermarket. Some health professionals haven't got a clue. As far as I can see some of the money that the NHS receives is wasted beyond belief!
Skylark
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Post by Skylark »

spot;1261218 wrote: Then what on earth has this thread descended into argument over? That's all anyone ever claimed.


Where is the arguement Spot?

We are discussing the NHS and it is a very interesting topic with some good posts!

It is obvious that we are not all going to agree with each other but then that is what debating is all about!

We all have our tales to tell.
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Oscar Namechange
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Post by Oscar Namechange »

Skylark;1261226 wrote: Thanks Abbey. More people need to be like you. You supported and stuck up for you mum and that is to your credit.

Well, that is insensitive to be told you have cancer over a mobile in a supermarket. Some health professionals haven't got a clue. As far as I can see some of the money that the NHS receives is wasted beyond belief! How is money being wasted in the NHS equal to a patient recieving news that they have cancer on a mobile phone? That is not wasting money, it is saving It by way of saving a consultation.
At the going down of the sun and in the morning, we will remember them. R.L. Binyon
Skylark
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Post by Skylark »

oscar;1261239 wrote: How is money being wasted in the NHS equal to a patient recieving news that they have cancer on a mobile phone? That is not wasting money, it is saving It by way of saving a consultation.


Well would you like to be told you had cancer via a mobile phone? My comment about wasting money was not about a mobile phone call. Money is wasted though in other areas!
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Oscar Namechange
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Post by Oscar Namechange »

Skylark;1261250 wrote: Well would you like to be told you had cancer via a mobile phone? My comment about wasting money was not about a mobile phone call. Money is wasted though in other areas!
It depends on many aspects as to the nature of the call. If I had gone to be checked for cancer in the first case and not secondry, Obviousley I would not want to be notified by mobile phone. If the circumstances were that I knew I had cancer but knew not what type of cancer and it was that Imfo that was text to me, I would not mind so much given my understanding of how under-funded the NHS is. I am sure this is not normal practice and in Abbeys Sisters case, it may be down to a lazy member of staff. If I were Abbey or her sister, I would take this to the Admin and demand an explanation.
At the going down of the sun and in the morning, we will remember them. R.L. Binyon
Skylark
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Post by Skylark »

oscar;1261251 wrote: It depends on many aspects as to the nature of the call. If I had gone to be checked for cancer in the first case and not secondry, Obviousley I would not want to be notified by mobile phone. If the circumstances were that I knew I had cancer but knew not what type of cancer and it was that Imfo that was text to me, I would not mind so much given my understanding of how under-funded the NHS is. I am sure this is not normal practice and in Abbeys Sisters case, it may be down to a lazy member of staff. If I were Abbey or her sister, I would take this to the Admin and demand an explanation.


I think that in some cases where treatment is urgent say for that day, a member of staff would ring up by mobile. As you say it would depend on the nature of the cancer.

Anyway Oscar take care, it must be very worrying about your husband but judging by what you say, he is having the best of care!
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Oscar Namechange
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Post by Oscar Namechange »

Skylark;1261257 wrote: I think that in some cases where treatment is urgent say for that day, a member of staff would ring up by mobile. As you say it would depend on the nature of the cancer.

Anyway Oscar take care, it must be very worrying about your husband but judging by what you say, he is having the best of care!
Thanks for your good wishes. :)
At the going down of the sun and in the morning, we will remember them. R.L. Binyon
gman
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Post by gman »

lou lou belle. I am a colon/liver cancer patient. Have they removed any part of the colon, radiation or chemtherapy? They don't know why he continues to loose blood? I would be DEMANDING some answers. Is his cancer treatable? Are they letting him go? Doc has to give you some answers. I'll check back to see if I can help, but don't quite know what to tell you at the moment, but get some answers from his medical staff or find a hospital that will!!

gman
Looker38
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Post by Looker38 »

I am here as support to you!

I was diagnosed with stage 3 colon cancer in August of 2008 and I just finished up my last round of chemo in February of this year. So far scans have come back clear!

I don't want to get off track by talking about privacy laws but just to let you know that if you are not getting the answers or the help you deserve, to find another place to help you!

I have learned in my long and hard journey from doctors telling me that unless it is a pint of blood to not worry about it even though colon cancer ran in my family. I put my guard down and believed them. I went for eight months before finding another doctor that noticed the warning signs and checked me to tell me I had cancer.

I started at an oncologist office that I was referred to and had a horrible experience! I wasn't getting the answers or the support I needed to fight the constant vomiting, nausea, fatique etc. brought on by the chemo.

I finally went to another place and got the answers and the help I needed. I saw a whole team of doctors and by the next day after that visit I was feeling a million times better and actually took a walk with my husband, just down the street but before that would have been impossible.

I just wanted to reply to you and let you know that in my experience I had to take control and find doctors that listened to me and my concerns and to also find doctors that are trained in other areas of specialties because not all people respond to the same kinds of treatment.

Just my story but wanted to share. Take care!
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Oscar Namechange
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Colon Cancer

Post by Oscar Namechange »

Looker38;1261502 wrote: I am here as support to you!

I was diagnosed with stage 3 colon cancer in August of 2008 and I just finished up my last round of chemo in February of this year. So far scans have come back clear!

I don't want to get off track by talking about privacy laws but just to let you know that if you are not getting the answers or the help you deserve, to find another place to help you!

I have learned in my long and hard journey from doctors telling me that unless it is a pint of blood to not worry about it even though colon cancer ran in my family. I put my guard down and believed them. I went for eight months before finding another doctor that noticed the warning signs and checked me to tell me I had cancer.

I started at an oncologist office that I was referred to and had a horrible experience! I wasn't getting the answers or the support I needed to fight the constant vomiting, nausea, fatique etc. brought on by the chemo.

I finally went to another place and got the answers and the help I needed. I saw a whole team of doctors and by the next day after that visit I was feeling a million times better and actually took a walk with my husband, just down the street but before that would have been impossible.

I just wanted to reply to you and let you know that in my experience I had to take control and find doctors that listened to me and my concerns and to also find doctors that are trained in other areas of specialties because not all people respond to the same kinds of treatment.

Just my story but wanted to share. Take care!
Hi Looker, I am very sorry to hear of your Illness. Good for you in getting the answers that you needed.

The difference here is that you were the Patient. The Poster of the thread is not suffering from cancer and is not the patient. It is her Father In Law and the issue seemed to be the lack Of Imfo from his doctors to family. Family do not have a right to the prognosis without their permission.

I wish you all the very best. :-6
At the going down of the sun and in the morning, we will remember them. R.L. Binyon
gman
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Colon Cancer

Post by gman »

Lou lou belle, who did your father in law put on the medical information release form? Any family member or friend? They are allowed the medical info.
lou lou belle
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Colon Cancer

Post by lou lou belle »

Can i just say many thanks for all the lovely replies.

My husband is the point of contact.

Its not good news, he is in the final stages of colon cancer, we have been told that it has spread to other areas.

My father-in-law has also chosen not to have chemo or any kind of medical assistance to prolong his life. He wants to go home to die. I dont blame him, I do think he should be allowed to die with some dignity and in the arms of his family.

We have been contacted by a McMillian nurse who will be there every day.

Shes fantastic and I wish we had more like her in this world. I expect we will build a great relationship with her during this sad time.
Skylark
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Colon Cancer

Post by Skylark »

lou lou belle;1262667 wrote: Can i just say many thanks for all the lovely replies.

My husband is the point of contact.

Its not good news, he is in the final stages of colon cancer, we have been told that it has spread to other areas.

My father-in-law has also chosen not to have chemo or any kind of medical assistance to prolong his life. He wants to go home to die. I dont blame him, I do think he should be allowed to die with some dignity and in the arms of his family.

We have been contacted by a McMillian nurse who will be there every day.

Shes fantastic and I wish we had more like her in this world. I expect we will build a great relationship with her during this sad time.


Lou Lou Belle, I am so sorry to hear of your sad news. I agree that he should be allowed to die with dignity with his loving family by his side.

Take care,

Skylark
lou lou belle
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Post by lou lou belle »

Thank you, I know its going to be a difficult time. I just hope he doesnt suffer too much
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Peg
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Post by Peg »

lou lou belle;1262667 wrote: Can i just say many thanks for all the lovely replies.

My husband is the point of contact.

Its not good news, he is in the final stages of colon cancer, we have been told that it has spread to other areas.

My father-in-law has also chosen not to have chemo or any kind of medical assistance to prolong his life. He wants to go home to die. I dont blame him, I do think he should be allowed to die with some dignity and in the arms of his family.

We have been contacted by a McMillian nurse who will be there every day.

Shes fantastic and I wish we had more like her in this world. I expect we will build a great relationship with her during this sad time.


I am so sorry about you FIL.

I am assuming a McMillian nurse is like a hospice nurse over here. Because we had such a wonderful hospice nurse for my mother, my daughter decided to go into medical assistanting. I hope he gets a nurse who is as wonderful as the one my mom had. She made a rough time a little easier on all of us.
lou lou belle
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Colon Cancer

Post by lou lou belle »

Yes, she will visit his home every day, and ensure he is comfortable, they are angels. We have been given a lot of literature to read up on.

They dont only support the patient they support us too. Its an invaluable service.
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Oscar Namechange
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Colon Cancer

Post by Oscar Namechange »

lou lou belle;1262692 wrote: Yes, she will visit his home every day, and ensure he is comfortable, they are angels. We have been given a lot of literature to read up on.

They dont only support the patient they support us too. Its an invaluable service. The Macmillan Foundation cared for both my Father and Sister right to the end and supported the Family.

The best way you can show your gratitude is by donating generously to the Macmillan charity so the funds are available to continue to help other Families as well as your own.

http://www.macmillan.org.uk/Home.aspx

I hope your FIL has a dignified peaceful end.
At the going down of the sun and in the morning, we will remember them. R.L. Binyon
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Kathy Ellen
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Post by Kathy Ellen »

I'm so sorry to hear about your Father-in-Law, Lou Lou. I hope he will not be in too much pain.



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Odie
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Post by Odie »

I'm very sorry to hear about your father in law.

:yh_pray
Life is just to short for drama.
Tan
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Colon Cancer

Post by Tan »

Im sorry to hear about your father in law Lou Lou . I hope Im not out of line or too graphic by asking, but why is he losing so much blood? Why does this happen? Im unfamiliar and curious. Please dont answer if you choose not to...best wishes...
Tan
lou lou belle
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Colon Cancer

Post by lou lou belle »

Hi FG, I have not been on much, so much is happening at home. Things are really bad for him, the blood loss is due to a large tumour in his colon, further tests have revealed he has cancer of the stomach and lungs.

Things have moved so quickly, he is now going to a hospice, and was asked if he wanted surgery but has definately refused it.

I am actually relieved that he is going to a hospice, as he lives alone and we dont live that near to him to visit every day.

Thanks for all your kind words. I will keep you informed of how things go.

Our life is on hold, we cant plan anything at the mo. But so somehow its been good to get to see how well my family deal with such a situtation. I just hope its not too prolonged and he does not suffer too much.
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abbey
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Post by abbey »

How very sad.

My thoughts are with you and your family. :yh_flower
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Raven
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Post by Raven »

lou lou belle;1262687 wrote: Thank you, I know its going to be a difficult time. I just hope he doesnt suffer too much
He wont. I promise. The Macmillan team will set up what they call a grasby syringe driver filled with opiates for the pain and sedatives for everything else. It will be peaceful and with loved ones around, he will just slip away without so much as a sigh. No pain, no suffering. I promise.

I am terribly sorry for your loss. Be at peace loulou. He wont suffer anymore honey.
~Quoth the Raven, Nevermore!~
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flopstock
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Post by flopstock »

He has to feel wonderful that so many people around him care.:-6



Take care of you in all this also.
I expressly forbid the use of any of my posts anywhere outside of FG (with the exception of the incredibly witty 'get a room already' )posted recently.

Folks who'd like to copy my intellectual work should expect to pay me for it.:-6

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