You may be aware that I suffer from fibromyalgia, well poor old Jimbo has also been recently diagnosed with it too, bless him.
I did pm him offering some advice and support and being the kind and generous soul that he is he suggested starting a thread for it so that others can join in too.
So here it is.............
carry on people, Dr Immy is in the house
But there will be no, repeat no, rectal exams...............:sneaky:
Mine started with pain and loss of feeling in my hands, you get a strange sort of burning feeling too.
Then I developed at various times - irritable bowel syndrome, period problems - had a hysterectomy, sleep disorder, pain in other random places.
I also have a problem quite often with severe headaches that can last for weeks at a time.
Depression can also be triggered by fibromyalgia, but isn't a foregone conclusion.
What I have found is that I have had to learn to be aware of the signals that my body is sending to me when it gets to the stage that I need to stop or rest. If I don't then I suffer.
I know a couple of other people with this condition and back pain seems to be a common problem, I thought mine was just because of previous injuries but maybe not.
Getting help with sleep problems is vital, people with fibromyalgia need to sleep or they will be ill. My GP lets me have sleeping tablets on repeat prescription on the condition that I only take them a couple of nights a week so I don't get addicted. I can function fairly well if I have two good nights sleep a week, any less then I'm bad.
A strange side to this condition is that direct pressure to certain parts of the body is agony, if someone squeezes your arm for most people it's fine - for us it hurts and it lingers!
It's really hard to get a diagnosis for this condition as it's not that well known among doctors and some don't believe it exists. One of the worst parts for me was the months of not knowing what was wrong, one condition my GP thought it might have been was terminal so that was a shock!
This is a life-restricting condition if it is managed well, it needn't be life-destroying!
most of my fibro stuff does not bother me too much ,heavy legs and headaches .... the no sleeping is a killer and it seems to set up the killer attacks
i seem to have less syptoms than other friends that have it ,but when i get it boy do i get it ,my feet are sometimes so painfull i cant walk for a week or so the aches and pains are ok but if i get to tired then my speech tends to get slurred ant the pains get me ,i can honestly say its like someone digging a spike right through my foot i sweat and roll around the floor in agony ok someone else take a turn
I forgot that I get slurred speech sometimes - that seems quite common. Also concentration and memory can be affected.
My sympathy with the foot pain, I know that if it gets near my feet then I really have to slow down - it's just the worst place!
I was diagnosed with this over 2 years ago, they also diagnosed me with Chronic Fatigue(ME) at the same time, it is blimmin horrible but I have to say that my Dr is great and having her support and help really does help, the other GPs made me feel like it was all in my mind!
I am nobody..nobody is perfect...therefore I must be Perfect!
SuzyB;1128032 wrote: I was diagnosed with this over 2 years ago, they also diagnosed me with Chronic Fatigue(ME) at the same time, it is blimmin horrible but I have to say that my Dr is great and having her support and help really does help, the other GPs made me feel like it was all in my mind!
Blimey Suzy, there must be something in the water, two of you in one house!!!!
I had no idea that you had this too, hugs to you :-4
:o